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Our Mission

The Northwest Rett Syndrome Foundation is a non-profit organization founded in 1986 by a group of parents and professionals who recognized the need for a strong regional support group in the Northwest. The NWRSF is governed by a Board of Directors consisting of parents and professionals, and provides assistance through our goals.

Goals of the foundation:
  • Facilitating early recognition of Rett Syndrome.
  • Promoting Rett Syndrome awareness.
  • Supporting research efforts in the Northwest.
  • Hosting an annual conference for families and professionals.
  • Creating parent-to-parent network.
  • Providing updated information on current research and therapies through newsletters.
  • Providing information on area resources and services.

We encourage parents of girls and women with Rett Syndrome, as well as professionals, therapists, and educators with interest in Rett Syndrome, to join us. We welcome all ideas, advice, and comments to improve the lives of individuals with Rett Syndrome and their families.


Join the NWRSF


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NWRSF
P.O. Box 5475  
Salem, OR       
97304           
(888) 326-2185
                              
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